Spinal Muscular Atrophy Foundation
Invitation OnlyJackson, Wyoming · EIN 01-0759380 · Private foundation · Website
Grants paid (2024)$1.5M
Organizations funded11
Typical grant$141,212
Total assets$50.2M
Half of its grants to organizations were between $69,000 and $207,000.
From the return
How to apply
On its return for tax year 2024 the foundation checked the box saying it only makes contributions to preselected charitable organizations and does not accept unsolicited requests for funds.
What it funds
Share of grant lines on the latest return, classified from the purpose each grant states.
Where it gives
100% of grants went outside Wyoming.
Grants paid in tax year 2024
| Recipient | Location | Purpose | Amount |
|---|---|---|---|
| John Hopkins University | Baltimore, MD | Characterization of gene expression in motor neurons in sma | $238,814 |
| Swiss Federal Technology Institute of Lausanne | SZ | Testing of mitochondrial modulators in sma models | $218,006 |
| Stanford University | Palo Alto, CA | Generation of spinal cord motor neurons from pluripotent cells | $207,000 |
| University of Florida | Gainesville, FL | Characterization of muscle environment in sma | $197,907 |
| Stanford University | Palo Alto, CA | Oversight on the stanford-sma foundation regenerative medicine program projects | $167,825 |
| University of Edinburgh | UK | Characterization of neuromuscular junctions in sma | $141,212 |
| Stanford University | Palo Alto, CA | Characterization of neuron-glial-immune cell interactions in sma | $117,494 |
| Boston Children's Hospital | Boston, MA | Testing therapeutics that promote neuron growth in sma models | $98,571 |
| Stanford University | Palo Alto, CA | Characterization of muscle in sma patients | $69,000 |
| Stanford University | Palo Alto, CA | Development of noninvasive gene editing methods | $33,460 |
| Muscular Distrophy Association | Chicago, IL | Support of muscle regeneration summit with key muscle experts | $2,500 |
Grants approved for future payment
| Recipient | Location | Purpose | Amount |
|---|---|---|---|
| Harvard University | Cambridge, MA | Testing satellite cell replacement in sma models | $690,000 |
| Harvard University | Cambridge, MA | Development of biomaterials to regenerate muscle and motor neurons | $690,000 |
| Stanford University | Palo Alto, CA | Characterization of neuron-glial-immune cell interactions in sma | $653,281 |
| Boston Children's Hospital | Boston, MA | Testing therapeutics that promote neuron growth in sma models | $591,429 |
| Stanford University | Palo Alto, CA | Oversight on the stanford-sma foundation regenerative medicine program projects | $350,903 |
| University of Edinburgh | Characterization of neuromuscular junctions in sma | $333,776 | |
| John Hopkins University | Baltimore, MD | Characterization of gene expression in motor neurons in sma | $238,814 |
| Swiss Federal Technology Institute of Lausanne | Testing of mitochondrial modulators in sma models | $106,002 | |
| University of Florida | Gainesville, FL | Characterization of muscle environment in sma | $98,953 |
| University of Pittsburgh | Pittsburgh, PA | Testing effects of spinal cord stimulation in sma patients | $58,472 |
Giving by year
| Tax year | Grants paid | Grant lines |
|---|---|---|
| 2024 | $1,491,789 | 21 |
| 2023 | $1,155,632 | 16 |
Sources
- IRS Form 990-PF, tax year 2024, filed Nov 17, 2025 - IRS e-file batch, object ID 202543219349104244
- IRS Tax Exempt Organization Search for EIN 01-0759380
- Profile updated Nov 4, 2026
Facts on this page come from the foundation's own IRS Form 990-PF filings as published by the IRS. Grantvello does not know whether a foundation is accepting proposals right now: a past grant is not an open opportunity. Always confirm current guidelines with the funder before applying.